Providing information, advice and support to parents, children and young people about SEND since 1989

Translate here

Search
Latest news

National and Regional Services

(Click on the logos to go directly to each website)

1 Big Database is a database of local services for children and young families in Bristol, South Gloucestershire and North Somerset.

Helpline - 0870 4155 5455

Ace (Advisory Centre for Education) provides information about state education in England and Wales for 5-16 year olds and experts in school exclusion issues.

Ace do not have a helpline but you can email them at:

enquiries@ace-ed.org.uk

Afasic is a specialist charity for speech and language.

Helpline Monday – Thursday 11am – 3pm - 0845 355 5577 0r 020 7841 8900

The British Dyslexia Assosciation provides advice and support for those with Dyslexia.

Helpline - 10 – 12.45 am, 2 – 4.45 pm - 0118 966 8271

Cerebra aims to improve the lives of children with brain-related neurological conditions, through research, education and direct, ongoing support. They have a signpost service offering a wide range of links including Benefits and Health.

The Council for Disabled Children (CDC) is the umbrella body for the diabled children's sector in England, with links to other UK nations. 

Helpline -  0800 328 1159

The Council for Disabled Children aims to make a difference to the lives of disabled children and children with special educational needs.  They do this by influencing Government policy, working with local agencies to translate policy into practice and producing guidance on issues affecting the lives of disabled children.

Helpline -  0207 843 1900

The Council for Disabled Children also runs the The Expert Parent Programme. This is training and information for parents of disabled children to build their resilience and confidence when engaging with health services; the programme includes face to face training, online learning modules and a toolkit of resources for parents.

 www.councilfordisabledchildren.org.uk/expertparent

Contact a Family provides information, advice and support. They bring families together so they can support each other. They also campaign to improve their circumstances, and for their right to be included and equal in society.

Helpline Freephone: 10am – 4pm Monday – Friday - 0808 808 3555

Helpline - 10 – 12.30 am, 2 – 4pm - 01206 873 820

Click on the link below to see if you are claiming everything you are entitled to

www.cafamily.org.uk/news-and-media/make-sure-youre-claiming-everything-youre-

entitled-to-with-our-resources

Helpline - 0370 000 2288

For the new SEND code of practice go to

https://www.gov.uk/government/publications/send-code-of-practice-0-to-25

For the new guide for parents go to

www.gov.uk/government/publications/send-guide-for-parents-and-carers

For SEND support from the Department of Education and Department of Health go to

www.sendpathfinder.co.uk/

The Down's Syndrome Association provides information, training and membership to people with Down's Syndrome, their families or carers.

Helpline - 0333 1212 300

The Equality and Human Rights Commission seeks to identify and tackle areas where there is still unfair discrimination or where human rights are not being respected.

 

Disability Rights UK is an organisation run by and for people living with disabilties or health conditions. They provide information advice on benefits, education, skills and independent living.

Disabled students helpine - 0800 328 5050

Equality Advisory and Support Service - 0808 800 0082

Self directed support telephone and email service- 0300 555 1525

Member Organisations Welfare Rights Advice Service - 020 7250 8184

Eric is the leading charity dedicated to improving the lives of children and young people with continence problems.

Helpline - 0845 370 8008

ERIC is the only UK charity dedicated to improving the lives of children and young people with ongoing continence problems. - See more at: http://www.eric.org.uk/Help?PHPSESSID=3cqh7nmoc2chcr2vh48clahmc2#sthash.5ATibAVE.dpuf
ERIC is the only UK charity dedicated to improving the lives of children and young people with ongoing continence problems. - See more at: http://www.eric.org.uk/Help?PHPSESSID=3cqh7nmoc2chcr2vh48clahmc2#sthash.5ATibAVE.dpuf
ERIC is the only UK charity dedicated to improving the lives of children and young people with ongoing continence problems. - See more at: http://www.eric.org.uk/Help?PHPSESSID=3cqh7nmoc2chcr2vh48clahmc2#sthash.5ATibAVE.dpuf
ERIC is the only UK charity dedicated to improving the lives of children and young people with ongoing continence problems. - See more at: http://www.eric.org.uk/Help?PHPSESSID=3cqh7nmoc2chcr2vh48clahmc2#sthash.5ATibAVE.dpuf

 

ERIC is the only UK charity dedicated to improving the lives of children and young people with ongoing continence problems. - See more at: http://www.eric.org.uk/Help?PHPSESSID=3cqh7nmoc2chcr2vh48clahmc2#sthash.5ATibAVE.dpuf
ERIC is the only UK charity dedicated to improving the lives of children and young people with ongoing continence problems. - See more at: http://www.eric.org.uk/Help?PHPSESSID=3cqh7nmoc2chcr2vh48clahmc2#sthash.5ATibAVE.dpuf

Family Lives (formally Parentline) provides advice and support for famlies over the telephone, via live online chat, email, forums and parenting courses.

Helpline - 7am-midnight - 0808 800 2222

 

The Family and Childcare Trust helps you to find family and childcare services in your area.

go to www.finder.familyandchildcaretrust.org/kb5/fct/childcarefinder/home.page?

  

Global Mediation provide disagreement resolution and mediation services for the South West. Mediation advice must be sought before lodging an appeal to the First Tier Tribunal (SEND).  

Free phone Helpline - 0800 064 4488

 

The Department of Health provides useful publications.

Telephone - 020 7035 4848

Click on the link below to find out about carers allowance

https://www.gov.uk/carers-allowance/how-to-claim

I CAN is a children’s communication charity. They are experts in helping children develop the speech, language and communication skills they need.

Helpline - 020 7843 2544

The Information, Advice and Support Servies Network (formally National Parent Partnership Network) provides local impartial, confidential and free local IAS services. For Bristol, North Somerset and South Gloucestershire, this service is provided by Supportive Parents.

Helpline - 0207 843 1900

IPSEA is the Independent Panel for Special Education Advice.

IPSEA Tribunals – expert service in this area - 01394 384 711

IPSEA Helpline Freephone - 0800 018 4016

Admin - 01934 380 518

 

KIDs work with and support children and young people from birth to the age of 25 who are disabled who falls into three streams; Early Years, School Years and Transition in Adulthood. They also support families who care for a disabled child or young person.

Kids do not have a helpline but you can contact them here

 

Mencap works in partnership with people with learning disabilities, aiming to change laws, challenge prejudice and support them to live their lives as they choose.

Learning Disability Freephone Helpline

10am-4pm Monday-Friday - 0808 808 1111 

MindEd provides simple, clear guidance on children and young people's mental health, wellbeing and development to any adult working with children, young people and families. They offer free, completely open access, online education in over 300 topics. https://www.minded.org.uk/ 

Helpline and Information Centre - 0845 070 4004

for Education Advice or Tribunal Support - 0845 070 4002

Minicom - 0845 070 4003

The National Deaf Children's Society provides support information, resources, support and advice for children, young people and their families.

Helpline - 0808 800 8880

The The National Network of Parent Carer Forums (NNPCF) is made up of Parent Carer Forums of which there is one in almost every local authority area in England. They aim to achieve close working relationships with all local authorities and health authorities at all levels, including local working with Clinical Commissioning Groups (CCGs).

Helpline - 0207 608 8708

Parents for Inclusion is a parent-led organisation which is fully committed to human rights as the driving force towards an all inclusive education system and always works in partnership with disabled allies. They provide advocacy, support, education and training.

You can contact them here

The Preparing for Adulthood programme (PfA) is funded by the Department for Education as part of the delivery support for the SEN and disability reforms. It brings together a wide range of expertise and experience of working with young people and families, at a local and national level and across government, to support young people into adulthood with paid employment, good health, independent living and friends, relationships and community inclusion.

Helpline - 020 7843 6348

The Rainbow Trust supports families in England who have a child aged 0-18 years of age with a life threatening or terminal illness.

Helpline - 01372 363438

Rathbone is an association of charitable trusts. They provide a helpline for SEND advice (also Asian language).

Helpline - 0800 917 6790

Skill is a post 16 advice body for students with disabilities.

Helpline 1.30 – 4.30pm - 0800 328 5050

Scope provides information and support for people with cerebral palsy.

Helpline - 0800 800 3333

Helpline - 01335 392 555

Discrimination helpline - 0207 925 5750

D.f.E.S. for SENDIST publications – SEND: How to Appeal - 0845 602 2260

Torbay have produced a really useful directory of national SEND organisations here

Turn to us helps you to find out which benefits and grants you may be entitled to

www.turn2us.org.uk/Find-Benefits-Grants

Unique aims to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awareness.

Helpline - 01883 723356

Well Aware provides information on health and wellbeing services, support organisations, activities and groups in Bristol, South Gloucestershire, Bath and North East Somerset, North Somerset and Somerset.

Helpline - 0808 808 5252

 

YoungMinds is the UK’s leading charity committed to improving the emotional wellbeing and mental health of children and young people. Driven by their experiences we campaign, research and influence policy and practice.

Helpline - 0808 802 5544